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Montana Children’s Special Health Services Survey

young boy with mouth guardThe Montana Children’s Special Health Services Survey is mailed to a sample of families with a child(ren) or youth with special health care needs (CYSHCN) in Montana. This survey is about the current care families and their child(ren) or youth with special healthcare needs receive in the healthcare setting, with particular focus within the medical home and transition to adulthood systems of care.

The information collected by the Survey will be used to identify the following among families of CYSHCN:

  1. Important health concerns for children and adolescents with special health care needs;
  2. Input to ascertain design criteria for intervention procedures and establishing sustainable health care supports;
  3. Criteria for judging the significance and satisfaction of the systems of care that families of CYSHCN currently experience; and what families recommend to improve the current system.

Received the Survey? If you have received a Survey in the mail and want to learn more, please follow this web link to read the FAQs for Survey Respondents (PDF)

The Montana Children’s Special Health Services (CSHS) Survey was mailed to a sample of families with a child(ren) or youth with special health care needs (CYSHCN) in Montana. Deadline to submit the Survey is May 15th, 2017. If you intend to mail-in your survey please do so no later than 4-5 business days prior to the May 15th deadline.

Community Discussion Forums

We are in our final phase of the CSHS Project and will be hosting Community Discussion Forums across Montana in April and May, 2017. During these forums parents and primary caregivers of CYSHCN will be asked to discuss and interpret the Montana Children’s Special Health Services Survey current findings.

"Children and youth with special health care needs (CYSHCN) are a diverse group of children ranging from children with chronic conditions such as asthma or diabetes, to children with autism, to those with more medically complex health issues such as spina bifida or other congenital disorders, to children with behavioral or emotional conditions." (More information is available at: http://www.amchp.org/)

When and where

Helena: Wednesday, May 4th, 2017, TBD
Butte: Wednesday, May 4th, 2017, 4:00pm – 5:30pm at MILP and 6:30-7:30 at 4cs
Great Falls: TBA
Missoula: TBD, Headwaters Park and Rec Meeting Room, Currents Aquatics Center in McCormick Park, 600 Cregg Ln, Missoula 59801
Kalispell: TBA
Billings: Tuesday, May 23rd, 2017,

  • 9:30-11:00 A.M. LIFTT, Address: 1201 Grand Ave, Billings, MT 59102, Phone: (406) 259-5181
  • 12pm – 1:00 P.M. at Billings Clinic
  • 1:30-3:00 P.M. LIFTT, Address: 1201 Grand Ave, Billings, MT 59102, Phone: (406) 259-5181

Miles City: Wednesday, May 24th, 2017, 4:30pm – 6pm, TBD

Support

We are able to provide families with a $25 reimbursement for expenses related to taking part in the discussion forum. If you would need to travel more than 50 miles to attend the event, or if you need accommodations or an interpreter, please contact Severin Studer from the Rural Institute at the University of Montana (This email address is being protected from spambots. You need JavaScript enabled to view it.). For interpreters especially, please try to give us at least 1 week before the scheduled event to schedule an interpreter. Food and refreshments will be provided.

Unable to attend?

In the event that you will not be able to attend the forum but would still like to be involved and receive the information provided, please contact Severin Studer (This email address is being protected from spambots. You need JavaScript enabled to view it.).

More info

If you have received a Survey in the mail and/or want to learn more, or you want more information on this phase of the project or how you may be eligible to participate in the Forums, please visit Montana Children’s Special Health Services Survey

Contact Us

If you have questions about the survey methodology, please contact Dr. Meg Traci, This email address is being protected from spambots. You need JavaScript enabled to view it., 406-243-4956.

If you have questions about the Montana Children’s Special Health Services Program, please contact Rachel Donahoe, This email address is being protected from spambots. You need JavaScript enabled to view it. , 406-444-3617.