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PLUK presents an "Un-Typical Workshop"

PLUKUn ConferenceNovember 14, 2016 (Monday morning) 9:00am - noon (FREE brunch)!
St. Francis Catholic Church Reception Center, 411 S 5th St, Hamilton, MT 59840
Help parents/caregivers of children with special needs and friends connect & ask questions related to any family, school, medical, or life issues
RSVP required by Monday, November 7 at http://RSVP.PLUK.ORG, or to receive follow-up information if you are not able to join in person.
Contact Jennifer Gaston-Smith, Western MT PLUK Family Support Partner at (406)255-0540 x707 or This email address is being protected from spambots. You need JavaScript enabled to view it.

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Hope without Hype

hope without hype

The Latest in Alzheimer's Research An Alzheimer’s Association presentation
Offered for clinicians, researchers, students, aging-services providers, and caregivers.

Wednesday, November 9, 2016 9:00 - 10:00am
Skaggs Building Foyer Coffee and conversation with Dr. Hartley10:00 - 11:00am Skaggs, room 114

No cost to attend. Registration is apprecieated. Visit alz.org/montana or call 800=272-3900

What is AUCD?

"AUCD is a network of people, with and without disabilities, who are passionate about growing the next generation of leaders and driving positive change for people with disabilities and their families. In this video, learn about the nationwide network of AUCD centers and programs, and the many ways they work to improve our communities. Join us as we work together to advance the well-being of all people with disabilities and their families."

October is Disability Employment Month

2016 Disability Employment MonthMontana Disability & Health Update: Montanans living with disability experience poorer health compared to those living without disability. Healthy People 2020 (HP2020) “...provides science-based, 10-year national objectives for improving the health of all Americans.”

Living Well and Working Well with a Disability: Two programs provided by Montana Centers for Independent Living to help people realize meaningful life goals. like employment, through peer support and improved health. Working Well builds on the concepts introduced in the Living Well program but focuses on improving health in preparation for, or maintaining, employment.

Two programs highlighted at the Best Beginnings Advisory Council

Planning Your Transition from Pediatric to Adult Health Care

transition workbookThis publication is designed for Montanans under age 30 living with special health care needs and/or a disability. It offers information about preparing for the transition from pediatric to adult health care, choosing medical providers, paying for services, taking responsibility for one’s own health, and much more.

Medical Home Portal

The Medical Home Portal is a unique source of reliable information about children and youth with special health care needs (CYSHCN), offering a “one-stop shop” for their families, physicians and medical home teams, and other professionals and caregivers

Upcoming Conference Calls of the IACC's Strategic Plan Update Working Groups

Agenda: To discuss updates of the IACC Strategic Plan on autism spectrum disorder (ASD) research and services activities.
 
Remote Access: The meetings will be remotely accessible by conference call.  Members of the public who participate using the conference call phone number will be in listen-only mode.

Please visit the IACC Meetings page for the latest information about the meeting, remote access information, the agenda, materials and information.

Fall Prevention Awareness Day 2016

MonTECH Rural Institute for Inclusive Communities

Falls Free National Council on Aging

FALL RISK SCREENING
Come learn how to prevent falls!
Each year, 1 in 3 adults aged 65+ fall. Most falls ARE preventable. Come learn about your individual fall risk factors and how to prevent falls for YOU!

Missoula Senior Center

Thursday, September 22

2PM - 4PM

Barclay - "Be yourself, and Enjoy Life"

Barclay - Featured Emerging Leader

Meet Tansisiton and Employment project - Featured Emerging Leader
BARCLAY - "Be yourself, and Enjoy Life"
By Lauren Beyer, Rural Institute Project Assistant

Barclay leads a life which is full of meaning. He is active, talented, and kind. I asked about his dreams, and he told me he wanted to keep enjoying his life and his freedom. When I asked what advice he would like to pass along to readers and others with disabilities, he said, emphatically: "Be yourself, and enjoy life."

Continue reading about Barclay

Autism Research

spark
The Rural Institute for Inclusive Communities has been asked by our partners at the University of Washington to help them learn more about ASD and what causes it.

For additional information on how your family can help, please visit the SPARK website for questions and assistance.

The Rural Institute receives no fee or royalty for Montana participation. Our sole purpose is to share information and to be part of the solution.

Please visit the Montana Autism Center for more information about ASD in Montana, www.mtautism.org

Montana Children’s Special Health Services Survey

young boy with mouth guardThe Montana Children’s Special Health Services Survey is mailed to a sample of families with a child(ren) or youth with special health care needs (CYSHCN) in Montana. This survey is about the current care families and their child(ren) or youth with special healthcare needs receive in the healthcare setting, with particular focus within the medical home and transition to adulthood systems of care.

The information collected by the Survey will be used to identify the following among families of CYSHCN:

  1. Important health concerns for children and adolescents with special health care needs;
  2. Input to ascertain design criteria for intervention procedures and establishing sustainable health care supports;
  3. Criteria for judging the significance and satisfaction of the systems of care that families of CYSHCN currently experience; and what families recommend to improve the current system.

Received the Survey? If you have received a Survey in the mail and want to learn more, please follow this web link to read the FAQs for Survey Respondents (PDF)

The Montana Children’s Special Health Services (CSHS) Survey was mailed to a sample of families with a child(ren) or youth with special health care needs (CYSHCN) in Montana. Deadline to submit the Survey is May 15th, 2017. If you intend to mail-in your survey please do so no later than 4-5 business days prior to the May 15th deadline.

Community Discussion Forums

We are in our final phase of the CSHS Project and will be hosting Community Discussion Forums across Montana in April and May, 2017. During these forums parents and primary caregivers of CYSHCN will be asked to discuss and interpret the Montana Children’s Special Health Services Survey current findings.

"Children and youth with special health care needs (CYSHCN) are a diverse group of children ranging from children with chronic conditions such as asthma or diabetes, to children with autism, to those with more medically complex health issues such as spina bifida or other congenital disorders, to children with behavioral or emotional conditions." (More information is available at: http://www.amchp.org/)

When and where

Helena: Wednesday, May 4th, 2017, TBD
Butte: Wednesday, May 4th, 2017, 4:00pm – 5:30pm at MILP and 6:30-7:30 at 4cs
Great Falls: TBA
Missoula: TBD, Headwaters Park and Rec Meeting Room, Currents Aquatics Center in McCormick Park, 600 Cregg Ln, Missoula 59801
Kalispell: TBA
Billings: Tuesday, May 23rd, 2017,

  • 9:30-11:00 A.M. LIFTT, Address: 1201 Grand Ave, Billings, MT 59102, Phone: (406) 259-5181
  • 12pm – 1:00 P.M. at Billings Clinic
  • 1:30-3:00 P.M. LIFTT, Address: 1201 Grand Ave, Billings, MT 59102, Phone: (406) 259-5181

Miles City: Wednesday, May 24th, 2017, 4:30pm – 6pm, TBD

Support

We are able to provide families with a $25 reimbursement for expenses related to taking part in the discussion forum. If you would need to travel more than 50 miles to attend the event, or if you need accommodations or an interpreter, please contact Severin Studer from the Rural Institute at the University of Montana (This email address is being protected from spambots. You need JavaScript enabled to view it.). For interpreters especially, please try to give us at least 1 week before the scheduled event to schedule an interpreter. Food and refreshments will be provided.

Unable to attend?

In the event that you will not be able to attend the forum but would still like to be involved and receive the information provided, please contact Severin Studer (This email address is being protected from spambots. You need JavaScript enabled to view it.).

More info

If you have received a Survey in the mail and/or want to learn more, or you want more information on this phase of the project or how you may be eligible to participate in the Forums, please visit Montana Children’s Special Health Services Survey

Contact Us

If you have questions about the survey methodology, please contact Dr. Meg Traci, This email address is being protected from spambots. You need JavaScript enabled to view it., 406-243-4956.

If you have questions about the Montana Children’s Special Health Services Program, please contact Rachel Donahoe, This email address is being protected from spambots. You need JavaScript enabled to view it. , 406-444-3617.

 

Amy - Living Life to the Fullest

Meet Our Featured Emerging Leader

By Lauren Beyer, Rural Institute Project Assistant

amy emerging leaderAmy was featured as an Emerging Leader six years ago. She just celebrated her 40th birthday and is constantly changing and growing as a compassionate and independent adult.
 
Amy's parents live outside of Bozeman, Montana in the Gallatin Gateway. Upon her graduation from Bozeman High School, Amy decided she would like to stay in the area. Her parents bought her a house so she could have her own space. The house is a split-level duplex. Amy rents the first floor, and her family rents out the upstairs. Amy's self-sufficiency goes much further than her ability to live independently. She operates her own vehicle and her driving skills, paired with her GPS, make her unstoppable.

You can read more about Amy on the Transition and Employment Projects newsletter.

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