Krysta’s Transition Story –
Courageous and Tentative Steps
Towards Adulthood
By Kay Keeley and Kate Doyle
Krysta is a fine, warm, fun-loving young lady who came
into her family through a loving life plan established by her birth
grandmother and her birth mother. Her new family received a call just
before Thanksgiving some years ago when she was an infant and she was
welcomed into the family by her adoptive Mom and Dad. She was immediately
the center of delighted attention, which she now shares with two younger
brothers.
Early in life, Krysta had several surgeries to help her
walk and see better. She also has had assistance from the Child Development
Center, including speech, physical, and occupational therapists to help
her overcome the challenges that life has presented her. Krysta learns
best when she can connect new experiences to something she has already
experienced in the world. She also benefits from a relaxed environment
for learning and some repetition. Krysta has had her own spirit and
determination to aid her as well.
Krysta has been very popular in high school. Krysta has
four close friends her own age. She is very sweet, kind, and courteous,
although sometimes quiet and a little cautious. She is viewed by her
teachers as all of these things as well as pleasant and cooperative.
She establishes good rapport with adults she trusts.
Prior to the beginning of the formal transition process,
Krysta began working at her middle school picking up mail, delivering
mail to teachers’ boxes, and loading a snack cart. Throughout
high school, Krysta attended a summer transition program, working at
Dogs on the Run (a hot dog vending cart), painting bleachers, working
for the Forest Service, and assembling boxes for Pizza Hut. The Missoula
County Public School Outreach Vision Consultant has worked with Krysta
throughout high school, assisting with her transition assessments and
site location as well.
For the past two years, Krysta was enrolled in Vocational
Preparation classes as a part of her high school curriculum. She also
became involved in the formal Missoula County Public School’s
Transition Program as a participant in the Graduate to Work project.
The service provided by the school included these steps:
An Individualized Education Program (IEP) meeting
was held to establish Krysta’s potential need for assistance
from two state agencies, Vocational Rehabilitation Services and Developmental
Disabilities Services, and to make other transition plans.
Following referral to Vocational Rehabilitation Services
or VR as it is called, the VR Counselor began the process of assessing
Krysta’s interests, skills, abilities, and needs as they relate
to employment. The Counselor helped Krysta and her family select one
from the several Community Rehabilitation Providers, nonprofit private
government contractors whose role here is to conduct assessments which
will inform as to the level of coaching or other on-site support needed
by the student in community employment. Sometimes these assessments
lead to a job for the student, but this is not necessarily the case.
Krysta was also referred to Developmental Disability
(DD) Services, a state agency that can provide a variety of services,
including support for people who need help with life skills and maintaining
an independent adult household, support for people who need help with
learning new skills for a job as well as ongoing support on the job,
respite time for families whose children live at home, and a wide
range of other services. Krysta and her family met with her Case Manager
at DD Services to discuss needed and wanted services.
Krysta’s family selected Opportunity Resources,
Inc. (ORI) as their Community Rehabilitation Provider. The ORI Employment
Consultant began the process of locating employers in the community
who might be interested in having Krysta work at their business for
a short time while our knowledge about her work skills and interests
was developed. First, an Employment Consultant met with Krysta and
her family to prepare a Vocational Profile of Krysta including her
interests, her skills and abilities, her experiences at school, and
limitations which would need to be considered in making good judgments
about potential employment for her. Often the school provides this
Profile. During the Profile development and the Planning Meeting that
followed, we learned that Krysta especially likes working with animals.
We also considered some other options, including stocking with clothing,
working in a child care facility, and sweeping in a beauty shop, but
working with animals remained Krysta’s main love; this was true
even though she did not think of cleaning as a favorite chore and
often work with animals includes cleaning cages out.
Krysta and her consultant were provided with a folder
called a Portfolio, which pictures Krysta doing things at work, in
the community, and sometimes at home. The Portfolio serves as a largely
pictorial resume that the Employment Consultant can show to business
people who might want to have Krysta be a part of their work site.
Working with Krysta’s Vocational Preparation
teacher, an initial assessment was set up at Neff’s, a pet store
in Missoula. VR funded Krysta’s wages, which were paid to her
through ORI. The tasks to be performed included taking dog bones from
several bins arranged according to size and content, placing them
in plastic bags, and weighing them to assure that each bag contained
the proper amount of product. Krysta was then to place price stickers
on the bags and put them on the shelf for sale. The school provided
transportation and ORI provided a job coach during this experience.
As a result of this brief assessment, we determined that this kind
of work did not appropriately bring out or highlight skills that Krysta
could quickly learn to do well and easily. However, Krysta had her
first experience as a person being assessed in a familiar environment
where she knew the owner.
Krysta’s next VR-funded assessment was also
arranged at a pet store, this time Pet Nebula. There, Krysta cleaned
rabbit and guinea pig cages and was, as a part of her job, handling
the animals and being with the animals. Krysta is a good and careful
cleaner, thorough despite her low vision. At the end of the forty-hour
assessment, it was determined that Krysta’s work quality was
generally very good but that she needed to further develop her work
pace. Luckily, Krysta was able to continue at this site with coaching
as a part of her regular Vocational Preparation curriculum at her
high school, giving her additional time to develop her skills and
work patterns. Krysta received help with learning how to do her job
at Pet Nebula from a job coach, this time provided by the Missoula
County Public Schools. The coach was very creative in setting up an
accommodation that would allow Krysta to get organized in the morning
more quickly. She located a cart on which Krysta’s work tools
and materials could be loaded, kept within reach while she worked,
and kept in one place from day to day, thus eliminating the step of
gathering all these together each morning. (This step is challenging
for Krysta because of her low vision.) Again, the school provided
transportation for Krysta so that she could get to and from work.
When Krysta finished school in the spring of 2004, her employers gave
her a dozen roses and she continued one day a week at this site as
a part of her summer school curriculum. The owners at Pet Nebula really
enjoyed having Krysta in the store, saying as she relaxed, she lit
up their pet store.
Krysta has one more assessment to complete before
the Vocational Rehabilitation Counselor can determine whether she
would be comfortable and capable working in the community without
long-term job coach supports or long-term supports. This time she
has selected a retail clothing setting. She would like to clean out
dressing rooms and return stock to the sales floor. The Employment
Consultant will develop this assessment to begin in the fall of 2004.
If it is determined that Krysta will need long-term supports (usually
job coaching for more than a month at the beginning of a job), she
faces a possible wait of up to three years or more on a waiting list
before state agencies can make the funding for these services available
to her.
A couple of final observations seem in order. Krysta is
most comfortable with predictable and familiar things and events, with
things she already knows. Krysta has been popular and comfortable in
high school. Like many high school seniors who are looking ahead to
an adult life, Krysta has approached her transition activities with
some ambivalence - a combination of excitement at working, at doing
something fun, and a feeling of anxiety about the end of school, about
rapid change, about not doing well, about an as-yet-unknown experience.
Fortuitously, Krysta loved her experience at Pet Nebula and somewhat
to the surprise of all, has enjoyed cleaning the cages. Krysta says
that she feels that her skills and her independence as a cage cleaner
have grown.
With the additional information about Krysta gained from her school
and community-based work assessments, and with the expertise and resources
ORI, VR, DD, and other agencies can offer, we hope to find a good job
match, one in which Krysta will have the supports she needs to make
the contributions we know she is capable of making and to be able to
provide the benefit of her skills to an employer.
Note: Kay Keeley is Krysta’s mother
and Kate Doyle is her Employment Consultant from Opportunity Resources,
Inc.
Collaborative Funding And Team Roles -
Who Did What?
VR:
• Funding for Vocational Profile
• Funding for job development
• Funding for wages for paid community-based work assessment
• Funding for job coaching